Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families.
With the current pandemic, many families and individuals are wondering if a fatty acid oxidation disorder puts them more at risk for the coronavirus. At INFORM Network, we are here to clear up the confusion.
Fatty acid oxidation disorders can range from mild to severe, and the VLCAD deficiency life expectancy rates can vary drastically as well.
Living with a fatty acid oxidation disorder doesn’t have to be the end of the world. At INFORM Network, we are sharing some tips on managing this disorder so that you can have as much of a normal life as possible.
Leigh’s syndrome and ACAD9 are often associated with one another. Learn more about their connection and why this is the case.
For people with inborn errors of metabolism, they may have to follow a special fatty acid oxidation disorder diet. Learn more about what this FAOD diet may entail.
At Inform Network, we compare the CACT deficiency versus the CPT2 deficiency to give you the similarities and differences between these two very closely-related disorders.