My son has LCHAD, and I would like to join This group, but don’t see any links to do so. Please advise.
Beth, Thank you for inquiring about joining INFORM. The good news for you is that INFORM is a public website open to anyone. The only portion of INFORM that is restricted is our Virtual Tissue Bank, (VTB) which is for researchers to be able to communicate to one another on a high level medical platform. I would highly encourage you to join the MitoACTION family group, ( https://www.mitoaction.org/ ) if you haven’t already. We work very closely with Kira Mann, the organizations leader. And most importantly, keep following us! Take care, Keith McIntire
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