Research survey for rare disease patients and their families about impacts of COVID-19
Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families.
Are Fatty Acid Oxidation Disorders at Risk for Coronavirus?
With the current pandemic, many families and individuals are wondering if a fatty acid oxidation disorder puts them more at risk for the coronavirus. At INFORM Network, we are here to clear up the confusion.
INFORM Advances Research and Treatment of Fatty Acid Oxidation Disorders (FAODs)
Fatty acid oxidation disorders (FAODs) can threaten the lives of infants, children and adults. These inherited metabolic conditions prevent the body from generating cellular energy from fats during times of stress, illness or fasting, and can result in mild symptoms, chronic medical problems or sudden death.
