Keep Your Child with a Fatty Acid Oxidation Disorder Safe
Coping with having a child with a fatty acid oxidation disorder can make life a little bit tougher at times. There are certain restrictions that your child may have that many other children do not. While as a parent it may seem like danger is lurking around corner, they are plenty of preemptive measures you can take to try and keep that danger at bay.
Tips to Keep Your Child with an FAOD Safe
At the International Network for Fatty Acid Oxidation Research and Management (INFORM), we know that all you want as a parent is for your child to be happy and healthy. If your child has an FAOD, this can be a bit more challenging at times, so we are sharing some tips to keep your child with a fatty acid oxidation disorder safe.
- Follow the Doctor’s Orders. The best way to prevent anything from happening to your child is to listen to what the doctor or nutritionist has to say, and to follow it. While it may be tempting to push the limits sometimes, the results are not worth the risk. This also includes making regular appointments and not ignoring any red flags.
- Make Sure People Know. Especially if your child has a strict diet, it is important that the adults that interact the most with your child are aware of this. This may include your child’s teacher, babysitter, extended family, or a friend’s parents.
- Make a Notecard with Necessary Information. Sending your child with a laminated notecard that has their dietary restrictions and steps to take in case of any emergency could be a literal lifesaver. You could also convert this to a word document or PDF that you can text whoever is watching your child. This can be especially important for a child who is younger and does not understand the repercussions of not following the doctor’s orders.
- Send Your Child with Appropriate Snacks. FAODs like ACAD9 deficiency require preventing low blood sugar. If you child may be gone for an extended amount of time, sending them with appropriate snacks is a good way to make that they can keep their blood sugar up.
- Teach Your Child Early. The sooner your child understands their disorder and how to take care of themselves, the better. If you child with MTP deficiency is supposed to take regular MCT oil or carnitine supplements, but doesn’t know why, they could neglect to do so. Also, they may be tempted to ignore their dietary restrictions if they don’t understand the repercussions of not doing so.
While there is new fatty acid oxidation research being done every day, at the moment, people with FAODs may need to follow strict diets and monitor their blood sugar regularly. As a parent this can be scary, but if you follow these tips to keep your child with an FAOD safe, you can make your life a little easier.