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Explaining Your Child’s Fatty Acid Oxidation Disorder to Others

If your child has an FAOD you will hear all about the medical implications, but there are other matters that can be troubling. At INFORM, we have some tips on explaining your child’s fatty acid oxidation disorder to your loved ones.

By |2019-11-05T18:01:10+00:00October 29th, 2019|

UPMC Children’s Hospital Center for Rare Disease Therapy Interview with Dr. Jerry Vockley

UPMC Children's Hospital Center for Rare Disease Therapy Interview with Dr. Jerry Vockley Recently, UPMC Children's Hospital of Pittsburgh shared a video featuring some of the important work on rare diseases taking place today. The video featured Jerry Vockley, M.D., Ph.D., scientific director of INFORM and professor of human genetics and the [...]

By |2019-07-22T17:58:00+00:00March 6th, 2019|

INFORM’S NEW WEBSITE PROVIDES HELPFUL INFORMATION ON FATTY ACID OXIDATION DISORDERS (FAODs) FOR FAMILIES AND PROFESSIONALS

INFORM’S NEW WEBSITE PROVIDES HELPFUL INFORMATION ON FATTY ACID OXIDATION DISORDERS (FAODs) FOR FAMILIES AND PROFESSIONALS PITTSBURGH, PA – Parents worried about the diagnosis and treatment of children with fatty acid oxidation disorders (FAODs) now have a valuable resource: informnetwork.org, a new website by the International Network for Fatty Acid Oxidation Research [...]

By |2019-03-06T19:39:06+00:00March 6th, 2019|