Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families.
With the current pandemic, many families and individuals are wondering if a fatty acid oxidation disorder puts them more at risk for the coronavirus. At INFORM Network, we are here to clear up the confusion.
Fatty acid oxidation disorders (FAODs) can threaten the lives of infants, children and adults. These inherited metabolic conditions prevent the body from generating cellular energy from fats during times of stress, illness or fasting, and can result in mild symptoms, chronic medical problems or sudden death.
If you or someone you love was diagnosed with a fatty acid oxidation disorder, you might be wondering about treatment. The best way to treat fatty acid oxidation disorders is to learn how to manage FAOD symptoms.
Fatty acid oxidation disorders can range from mild to severe, and the VLCAD deficiency life expectancy rates can vary drastically as well.
Living with a fatty acid oxidation disorder doesn’t have to be the end of the world. At INFORM Network, we are sharing some tips on managing this disorder so that you can have as much of a normal life as possible.
Leigh’s syndrome and ACAD9 are often associated with one another. Learn more about their connection and why this is the case.
Rhabdomyolysis from fatty acid oxidation disorders is a common side effect of these conditions. Learn more about what that means for you or your loved one with an FAOD and why there is such a strong connection between the two.
For people with inborn errors of metabolism, they may have to follow a special fatty acid oxidation disorder diet. Learn more about what this FAOD diet may entail.
If your family is at risk, genetic counseling for fatty acid oxidation disorders is important. You could walk away feeling more knowledgeable and empowered about your situation.
