If your child has an FAOD you will hear all about the medical implications, but there are other matters that can be troubling. At INFORM, we have some tips on explaining your child’s fatty acid oxidation disorder to your loved ones.
Being a parent is hard enough, but having a child with an FAOD can make you worry even more. At Inform Network, we have some insight to keep your child with a fatty acid oxidation disorder safe.
Prenatal screening is an important way to catch a variety of diseases and health risks. Prenatal screening for FAODs just may save your unborn child’s life.
Sudden Infant Death Syndrome is a scary problem that stems from a variety of causes. At Inform Network, we are discussing the connection between sudden infant death syndrome and FAODs.
Genetics can be complicated, but at Inform Network, we are talking about the genetics of FAODs and the likelihood of your child having a fatty acid oxidation disorder.
Newborn screening is imperative in the health of newborn babies and their futures. Newborn screening for FAODs are a common way to diagnose these disorders.
If your child has a fatty acid oxidation disorder, you are probably feeling overwhelmed and scared. Do not worry, at INFORM we have a few tips on how to cope when your child has an FAOD.
At Inform Network, we compare the CACT deficiency versus the CPT2 deficiency to give you the similarities and differences between these two very closely-related disorders.
UPMC Children's Hospital Center for Rare Disease Therapy Interview with Dr. Jerry Vockley Recently, UPMC Children's Hospital of Pittsburgh shared a video featuring some of the important work on rare diseases taking place today. The video featured Jerry Vockley, M.D., Ph.D., scientific director of INFORM and professor of human genetics and the [...]
INFORM’S NEW WEBSITE PROVIDES HELPFUL INFORMATION ON FATTY ACID OXIDATION DISORDERS (FAODs) FOR FAMILIES AND PROFESSIONALS
INFORM’S NEW WEBSITE PROVIDES HELPFUL INFORMATION ON FATTY ACID OXIDATION DISORDERS (FAODs) FOR FAMILIES AND PROFESSIONALS PITTSBURGH, PA – Parents worried about the diagnosis and treatment of children with fatty acid oxidation disorders (FAODs) now have a valuable resource: informnetwork.org, a new website by the International Network for Fatty Acid Oxidation Research [...]