Research survey for rare disease patients and their families about impacts of COVID-19

Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families.

By |2020-05-13T14:32:35+00:00May 13th, 2020|

INFORM Advances Research and Treatment of Fatty Acid Oxidation Disorders (FAODs)

Fatty acid oxidation disorders (FAODs) can threaten the lives of infants, children and adults. These inherited metabolic conditions prevent the body from generating cellular energy from fats during times of stress, illness or fasting, and can result in mild symptoms, chronic medical problems or sudden death.

By |2020-05-01T15:55:54+00:00March 25th, 2020|
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