INFORM Advances Research and Treatment of Fatty Acid Oxidation Disorders (FAODs)

Fatty acid oxidation disorders (FAODs) can threaten the lives of infants, children, and adults. These inherited metabolic conditions prevent the body from generating cellular energy from fats during times of stress, illness, or fasting. Their symptoms can range from mild to chronic medical problems and even cause sudden death.

Founded in 2013 by a series of qualified doctors and researchers, the International Network for Fatty Acid Oxidation Research and Management (INFORM) is the only global scientific organization that focuses on FAODs and related enzymatic disorders involving the carnitine transport cycle. If there is one thing you should know about INFORM Network, our goal is to research and educate. We also look to inform the general public on FAODs, especially for family members of those with fatty acid oxidation disorders.

At the International Network for Fatty Acid Oxidation Research and Management (INFORM), we also host a fatty oxidation disorder conference each year that doubles as our annual meeting. Here top researchers can not only learn more about INFORM Network but also gather to discuss the most recent advances in the field.

To learn more about the International Network for Fatty Acid Oxidation Research and Management (INFORM), please feel free to contact us. If you want to ask questions about fatty acid oxidation disorders, our team has a wealth of information

INFORM Network

The International Network for Fatty Acid Oxidation Research and Management (INFORM) was formed by Jerry Vockley in order to promote research and discussion into the cause, diagnosis, and management of fatty acid oxidation disorders (FAODs). We offer several learning opportunities throughout the year for patients, families, and researchers. Our network will provide ​a collaborative framework for ongoing communication and research regarding these disorders, as well as work with our partners to sponsor a meeting each year. Please plan to join us in the future to hear from the experts on a wide range of topics from molecular pathophysiology to treatment strategies.

Mission Statement

INFORM brings together the best and brightest genetic researchers and clinicians worldwide, working to discover treatments and cures for fatty acid oxidation disorders to improve the lives of our patients and their families.

2024 INFORM Lecture Series

Please save these dates and time on your calendars NOW!
 February 19th / March 18th / May 20th and June 17th
 
All lectures are presented over ZOOM starting at 10:00AM – 11:00AM Eastern Standard Time

If you would like to be added to the lecture series mailing list, please send an email to Keith McIntire the INFORM Program Manager: keith.mcintire@chp.edu

“I appreciate that INFORM always provides us the most advanced, the most professional, and the most comprehensive information about defects of beta-oxidation.”

TOSHIYUKI FUKAO, PROFESSOR, GIFU UNIVERSITY, JAPAN

“Together we can generate the energy to beat these diseases”

JERRY VOCKLEY, MD, PhD , INFORM, SCIENTIFIC ORGANIZER

“INFORM brings together the best and brightest researchers and physicians from around the world to discuss cutting edge research and best and new practices in fatty acid oxidation disorders.”

KEITH W. MCINTIRE, DEPARTMENT OF GENETICS COORDINATOR

“The challenge with being on the cutting edge is that you are always dealing with things that didn’t happen yesterday”.

JERRY VOCKLEY, MD, PhD , INFORM, SCIENTIFIC ORGANIZER

Special Thanks to our INFORM 2023 Partners for supporting our 10th
Anniversary symposium!

Approximately

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Infants are Identified yearly with FAOD’s in the United States through Newborn Screening
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People Identified in the United States with FAOD’s
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People Living in the World with FAOD’s

Unlocking the Future

We are committed to discovering new FAOD treatments and cures to improve the lives of our patients and their families.